The Real Cruises Blog... Follow Nancy Here!
I will be sailing on the inaugural sailing and the naming of the godmothers ceremony and if you would like to follow me you can do so here::::::
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I leave next week and will be posting live from the ship!
See that you can do what you love with the gift of Life
Saturday, November 21, 2009
Monday, September 21, 2009
Missing you all
I have been thinking about the blog a lot lately. Why I stopped posting. Why I haven't written. What direction should the blog take now that I have had my transplant.
I feel totally guilty to my readers that I didn't take you through the transplant experience with me when it was happening. I mean, after all, isn't that what we were ALL waiting for????? Then I go and leave you hanging. In reality of course I was fighting for my life and hanging on by a thread and for quite a while that was all I could concentrate on... But then of course I *should have* picked it up and filled in the blanks and I think that is where I got stumped... Being a bit of a perfectionist I couldn't figure out if I should go back to the day of transplant or if I should just pick it up in real time or a combo of both and HOW to do that?
So, I did nothing. As you can plainly see.
I have been encouraged by many people who are still coming and thanking me for my blog, you know who you are and THANK YOU, also people I help face to face here in So Cal. Some that have passed away. Their spouses have told me that if their loved one who was now gone could say anything to me it would be to keep on sharing and helping....so here I am.
I don't know where I am going to take the blog but I promise you this. I am going to keep it going. It will stay Liver, Transplant, Cirrhosis, Organ Donation related.
It will have bits and pieces of Nancy thrown in and also other people going through some of the same challenges that we all do who go through this scary, terrifying, painful, confusing, soul searching, often magical journey of living with a life threatening, decompensating liver disease and the miracle of transplant.
So there you go!
I feel totally guilty to my readers that I didn't take you through the transplant experience with me when it was happening. I mean, after all, isn't that what we were ALL waiting for????? Then I go and leave you hanging. In reality of course I was fighting for my life and hanging on by a thread and for quite a while that was all I could concentrate on... But then of course I *should have* picked it up and filled in the blanks and I think that is where I got stumped... Being a bit of a perfectionist I couldn't figure out if I should go back to the day of transplant or if I should just pick it up in real time or a combo of both and HOW to do that?
So, I did nothing. As you can plainly see.
I have been encouraged by many people who are still coming and thanking me for my blog, you know who you are and THANK YOU, also people I help face to face here in So Cal. Some that have passed away. Their spouses have told me that if their loved one who was now gone could say anything to me it would be to keep on sharing and helping....so here I am.
I don't know where I am going to take the blog but I promise you this. I am going to keep it going. It will stay Liver, Transplant, Cirrhosis, Organ Donation related.
It will have bits and pieces of Nancy thrown in and also other people going through some of the same challenges that we all do who go through this scary, terrifying, painful, confusing, soul searching, often magical journey of living with a life threatening, decompensating liver disease and the miracle of transplant.
So there you go!
Labels:
Post Transplant.....
Spam Alert !!! Sorry for the hackers
Google is working on it and hopefully will capture the hacker soon! Yikes!
Saturday, September 12, 2009
Tuesday, July 14, 2009
Reminder: Nancy invited you to join Facebook...
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Monday, July 13, 2009
Three Rivers - TV series on Organ Transplantation
http://www.cbs.com/primetime/three_rivers/
I can't wait until this starts !!! I just saw it advertised. Looked it up and just knew you would all want to know about it ASAP !!!!
I know that it won't be true to life as no TV series is but it will bring much awareness to the subject and get people talking about it more. The more Transplantation is demystified the better! Anything that is done to increase awareness of the need for change in the donation system so there will be more organs available to people before they become so ill that it is hard or impossible to return to a normal healthy life the more support we will have to change things.
I can't wait until this starts !!! I just saw it advertised. Looked it up and just knew you would all want to know about it ASAP !!!!
I know that it won't be true to life as no TV series is but it will bring much awareness to the subject and get people talking about it more. The more Transplantation is demystified the better! Anything that is done to increase awareness of the need for change in the donation system so there will be more organs available to people before they become so ill that it is hard or impossible to return to a normal healthy life the more support we will have to change things.
Monday, June 22, 2009
7 months and Life is GREAT!
I just wanted to pop on here quickly.. Let you know everything is fantastic and I will be back shortly to get back to the blog... I feel terrible for not keeping all my loyal followers updated but I guess you can see that it is pretty obvious that I needed a break and was focusing on getting back on my feet and starting to breathe deep and explore my newly found life again..
Hugs and Love,,,
Don't miss a minute of the life you have,
Nancy
Hugs and Love,,,
Don't miss a minute of the life you have,
Nancy
Saturday, June 6, 2009
Reminder: Nancy invited you to join Facebook...
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Sunday, February 15, 2009
Now you know where I have been hiding...

Someone FINALLY broke me and got me to sign up for facebook, which I have been avoiding like the plague for a very long time.
Why????? Because as you all know I have an addictive personality and KNEW that I would start playing in there and waste, did I say waste?, I meant spend......way to much time in there figuring it all out and talking to people.
I am already so far behind...as you, my blog readers KNOW, That I certainly do not need one more thing to keep up with....but I did it anyway...
So as I promised you all I would start posting...well, I have been doing other things...
Oh, the pic of the Fur Fighter Product is a plug to you pet owners that you REALLY MUST BUY THIS PRODUCT! It will de-fur your furry life!
Be back later today.... I promise!. really.....
Labels:
day to day stuff
Saturday, February 7, 2009
Thursday, January 22, 2009
Clean up surgery

I wrote to you yesterday while in a holding pattern... I saw one of my surgeons, Dr Franco, on Tuesday for my bi-weekly appointment and blood work and he decided it was time for the catheter to come out....Not that the collective *we* didn't want to take it out earlier.....say, while I was in the hospital for a week?????
Well, that was the week that I had the liver biopsy and my pretty appendage, i.e. hematoma appeared refocusing all the efforts of that stay on what to do about the hematoma, had the bleeding stopped? and what about that clogged bile duct??????
They couldn't have cared less that the catheter that I no longer needed was still coming out of my chest. Let alone keeping me from a full shower that I so greatly desire.....Not having had one since the morning of my transplant...(I do bathe, but it consists of hair washing in the sink followed by a hand shower or bath avoiding the upper torso... OR, dressing myself properly with a bra and all....forcing me to wear baggy, boob hiding tops....(you girls know what I mean).
The photo of the catheter I had Joe take after a bath one day so you could see what I had been talking about. It was always wrapped up and covered with clean bandages....because it is an open line directly to my arteries we had to be extremely careful to keep it clean, dry and covered at all times because of a chance of infection. An infection in my blood stream .....well, wouldn't have been any fun...
Anyway, on Tuesday we scheduled the catheter removal to be done under anesthesia.... I guess he thought I had gone through enough and didn't make me go through the removal under a local and some sleepy time anesthesia which doesn't work to well on me..and at the same time clean out the hematoma.
I got to the hospital at 9:30am.....courtesy of Mary, THANK YOU AGAIN, MARY....and I finally went into the OR at about 3pm for less than an hour while Dr Franco cleaned me up and I was home that evening...
I go back tomorrow for a recheck and some more blood work... I will share that with you tomorrow...hopefully my bilirubin is continuing to drop. it was 2.3 yesterday. My yellow is continuing to clear up...and I will have more energy as it clears up.
By the way, I had my 2 month liverversary on the 16th!
And I do promise to start posting with pics about the actual transplant experience...I was going through some photos tonight...



















