Cruisin with the Real"s

Cruisin with the Real"s
Joe and Nancy Grand Cayman 10-07

Loma Linda Medical Center

Loma Linda Medical Center
Where the magic happens........

Friday, January 18, 2008

Dang it has been soooooooo cold !!!! BRRRRRRRR

This has been a great week. I have been sleeping so well which is unusual. But it has been cold and the bed cozy and warm. My night sweats seemed to be taking a break and just the piece of mind that we made it past that hurdle.

Thanks so much for your comments. I love them and they add so much to the blog. You guys are great!

I wrote a couple of other posts and POOF. They disappeared into oblivion. I will make sure to copy before posting from now on in case blogger decides to eat them up.

With the help of some of my online support group folks I was able to find out how the livers are allocated from UNOS and also how many people with my blood type and MELD score are in our allocation area week by week. It was very interesting. I found out that currently, as of January 11th 2008, (there will be new data posted next Tues.) That in our local So Cal area there are only 5 people in *my group* and one of those is a child who will need a small or partial liver. So depending on if anyone got transplanted in the last week, their MELDS changed or others were added like myself we will see what kind of group I am in next week. I just think it is interesting. It may seem obsessive but I don't like to feel in the dark and with the idea that I could suddenly get a phone call and run to the hospital or it could be a year or more..

But one of 5 in So Cal ?????????? WOW, no wonder the Dr said it might not be long.
Now that is with a MELD score of 26. The group is 25 or higher. So if my meld drops to 24 or below I fall into a new group. I am being tested every Tuesday now so they are keeping very close tabs. This is required for the list. In case you are interested this is the Data site for current candidates and recent transplants by center, region or state.

Back to my week. I have been working on the house a bit, got my nails done, made a trip to the dentist and am going to San Diego tomorrow to have lunch with my Mom.

I am toying with the idea of heading up a fundraiser for the local *DONATE LIFE* Chapter. It is at the end of April in Fullerton, CA. I will let you know some details on that if I decide to do it.
Timing is sort of an issue and I would need some help organizing it. Any takers? If you are interested, e-mail me.

My long list of projects is suddenly feeling the need for urgency and prioritiztion. LOL

Do you all like my new trick of hiding the links?????? I am learning. I have some new blog stuff to try this weekend.

Even though it has been so cold, the weather has just been beautiful. I hope everyone is enjoying it and the beginning of your new year!

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