Cruisin with the Real"s

Cruisin with the Real"s
Joe and Nancy Grand Cayman 10-07

Loma Linda Medical Center

Loma Linda Medical Center
Where the magic happens........

Friday, September 5, 2008

more fatigue and other symptoms of inivisible illnesses


You never know when it is going to hit you.

Fatigue, Extreme Tiredness....... It is an interesting thing. I haven't been overly tired. My energy level compared to what it used to be or what it should be if I wasn't sick is probably 6-7 out of 10 most days. But some times...you can't stay awake. I feel guilty about this. I don't want to feel guilty but I do.

Today for example I woke up after 8 hours of good sleep that most people would be more than happy to get..... I got up to start my day, as I was checking my e-mail I started to drift off. Now, I have tried to explain this before but it is difficult unless you suffer from the same kind of tiredness.... This is...THAT'S IT. I AM GOING TO GO TO SLEEP NOW!!!!! tiredness. So, I went back to bed went fast asleep and slept another 3 hours. I am still a little on the groggy side hours later. It is going to be one of those days...

The only thing that keeps me from really feeling guilty is because of my involvement in support groups and meeting other people that all shake their heads up and down and smile when anyone mentions this I KNOW, it is my disease and not laziness or anything else. IT IS A SYMPTOM of liver disease.

I think I will talk more about symptoms next....How difficult it is to explain to caregivers and others around you what is going on with you......................................... I gotta pee first....

another side effect of the drugs we all must take...........................................

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