Cruisin with the Real"s

Cruisin with the Real"s
Joe and Nancy Grand Cayman 10-07

Loma Linda Medical Center

Loma Linda Medical Center
Where the magic happens........

Thursday, December 11, 2008

recovery

Just a quick update..... I have been home technically since last Sat night but have spent almost every day at Loma Linda either having appt's with my surgeons, blood work or having dialysis. Today is an at home day. I am having someone come over and cut my hair today....It needs some help badly...

I am very tired when I am not trying to get all this stuff done. I am having a huge problem with mobility due to carrying so much extra fluid and am on 1 ltr per 24 hours liquid restriction which includes all liquid. It isn't much but it is coming off slowly. They took 4.5 liters off yesterday...Each dialysis is 4 hours in the chair plus a 2 hour commute and 30 min getting me hooked up. I mainly sleep during the sessions so far...My liver appt's are 2x a week at 7am for a blood draw which means we are up at 5am. on the road by 6...I have to travel with my feet up.

Monday I had too use a wheel chair to get in and yesterday I was able to use a walker....I can walk around the house with no walker.

My liver values are good...my alt and ast are 28 and 32......NORMAL! my bili is still high at 6.7, my creat is 4.5 but my hemoglobin is low...they are treating me for that after each dialysis.

I still can't pee...................Dr's say 95% of the time the kidneys come back...it's just a matter of when......

I am going to go sit on a lovely potty chair in my shower now so I can clean up and get my hair cut....

I want to go back and start at the beginning with you all but for now.....I think I will just write about what is happening day to day.....

2 comments:

Anonymous said...

Hi Honey,

Great to hear from you. Just take things one day at a tme and really easy and get as much rest as you can. We are thinking about you all the time and still praying for you and your recovery. We hope that your kidneys come back soon and that you will be more comfortable. Remember we are here for you whatever you may need.

Love you,

Karen and Bob

Gilbert Contreras said...

Nancy:Great alt ,ast numbers ,fluid eventually will come off,it is very uncomfortable, i know,mine took about 1 month for it to be gone totally.Keep up the good work!!!

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