Cruisin with the Real"s

Cruisin with the Real"s
Joe and Nancy Grand Cayman 10-07

Loma Linda Medical Center

Loma Linda Medical Center
Where the magic happens........

Thursday, May 15, 2008

the birth of the Loma Linda online support group

During this time I also decided that our wonderful weekly liver transplant support group at the hospital could benefit from another way to stay connected outside of our weekly face to face meetings.

You all know how I love how the Internet can keep people connected so I of course saw a way that it could fill a gap.

I have become VERY involved in our weekly support group. From the beginning I fell in love with the people. We have a wide variety of pre-transplant and post-transplant patients. People have gotten cirrhosis and to the point of needing a transplant in so many different ways I can't even count. We all come from different backgrounds, are different ages, have different health challenges and are at different stages in the process. But in the end we all are facing this illness called cirrhosis, headed towards transplant or a success story of a liver transplant sharing with us that there is life after transplant with us very scared.....pre transplant people. We share all kinds of things in the time we are together.

But, here is the gap. Some people live to far to come often, some people move post transplant, (Dana) or just get on with their lives and don't feel the need to come. We have new people with LOTS of questions, Some people we don't see for weeks because they are to sick to come, some people are awake all night and want to talk. Some caregivers need to share that our friends are in the hospital and need prayers.

So, hence the creation of the yahoo group for us. I started it, promote it and moderate it. It is going well and hopefully it will continue to grow and thrive.
We are having the annual picnic this Sunday so I will post some photo's next week.

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